Health-related quality of life, social support, and caregiver burden between six and 120 months after heart transplantation: a Spanish multicenter cross-sectional study
Por:
Delgado, JF, Almenar, L, Gonzalez-Vilchez, F, Arizon, JM, Gomez, M, Fuente, L, Brossa, V, Fernandez, J, Diaz, B, Pascual, D, Lage, E, Sanz, M, Manito, N, Crespo-Leiro, MG
Publicada:
1 sep 2015
Resumen:
A multicenter cross-sectional study was conducted to determine the current heart transplant (HTx) outcomes in Spain. Clinical and functional status, health-related quality of life (HRQoL), social support, and caregiver burden were analyzed in 303 adult transplant recipients (77.9% males) living with one functioning graft. Mean age at time of HTx (SD) was 56.4 (11.4) years, and the reason for transplantation in all patients was congestive heart failure. All patients had received a first heart transplant 6 (+/- 1), 12 (+/- 2), 36 (+/- 6), 60 (+/- 10), or 120 (+/- 20) months previously. Participants completed the Kansas City Cardiomyopathy Questionnaire (KCCQ), the EQ-5D, the Duke-UNC Functional Social Support Questionnaire, and the Zarit Caregiver Burden Scale. Reasonable HRQoL, social support, and caregiver burden levels were found at all time points, although a slight decrease in HRQoL was recorded at 120months (p0.033). Multivariate regression analyses showed that complications, comorbidities, and hospitalizations were associated with HRQoL (EQ-5D: 48.4% of explained variance, F-4,F-164=38.46, p<0.001; KCCQ overall summary score: 45.0%, F-3,F-198=54.073, p<0.001). Patient functional capabilities and complications affected caregiver burden (p<0.05). In conclusion, HTx patients reported reasonable levels of HRQoL with low caregiver burden. Clinical variables related to these outcomes included functional status, complications, and number of admissions.
Filiaciones:
Delgado, JF:
Hosp Univ 12 de Octubre, Madrid 28041, Spain
Almenar, L:
Hosp Univ La Fe, Valencia, Spain
Gonzalez-Vilchez, F:
Hosp Univ Marques Valdecilla, Santander, Spain
Arizon, JM:
Hosp Univ Reina Sofia, Cordoba, Spain
Gomez, M:
Hosp Univ Puerta Hierro, Madrid, Spain
Fuente, L:
Univ Valladolid, Hosp Clin, Valladolid, Spain
Brossa, V:
Hosp Santa Creu & Sant Pau, Barcelona, Spain
Fernandez, J:
Hosp Univ Gregorio Maranon, Madrid, Spain
Diaz, B:
Hosp Univ Cent Asturias, Oviedo, Spain
Pascual, D:
Hosp Univ Virgen Arrixaca, Murcia, Spain
Lage, E:
Hosp Univ Virgen Rocio, Seville, Spain
Sanz, M:
Hosp Univ Miguel Servet, Zaragoza, Spain
Manito, N:
Hosp Univ Bellvitge, Barcelona, Spain
Crespo-Leiro, MG:
Complejo Hosp A Coruna, La Coruna, Spain
Open Access
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