The Perspectives of Patients with Chronic Diseases and Their Caregivers on Self-Management Interventions: A Scoping Review of Reviews
Por:
Quispe, END, Garcia, LM, Villagran, CO, Heijmans, M, Sunol, R, Fraile-Navarro, D, Perez-Bracchiglione, J, Ninov, L, Salas-Gama, K, Garcia, AV, Alonso-Coello, P
Publicada:
1 nov 2021
Ahead of Print:
1 abr 2021
Resumen:
Background Self-management (SM) interventions are supportive interventions systematically provided by healthcare professionals, peers, or laypersons to increase the skills and confidence of patients in their ability to manage chronic diseases. We had two objectives: (1) to summarise the preferences and experiences of patients and their caregivers (informal caregivers and healthcare professionals) with SM in four chronic diseases and (2) to identify and describe the relevant outcomes for SM interventions from these perspectives. Methods We conducted a mixed-methods scoping review of reviews. We searched three databases until December 2020 for quantitative, qualitative, or mixed-methods reviews exploring patients' and caregivers' preferences or experiences with SM in type 2 diabetes mellitus (T2DM), obesity, chronic obstructive pulmonary disease (COPD), and heart failure (HF). Quantitative data were narratively synthesised, and qualitative data followed a three-step descriptive thematic synthesis. Identified themes were categorised into outcomes or modifiable factors of SM interventions. Results We included 148 reviews covering T2DM (n = 53 [35.8%]), obesity (n = 20 [13.5%]), COPD (n = 32 [21.6%]), HF (n = 38 [25.7%]), and those with more than one disease (n = 5 [3.4%]). We identified 12 main themes. Eight described the process of SM (disease progression, SM behaviours, social support, interaction with healthcare professionals, access to healthcare, costs for patients, culturally defined roles and perceptions, and health knowledge), and four described their experiences with SM interventions (the perceived benefit of the intervention, individualised care, sense of community with peers, and usability of equipment). Most themes and subthemes were categorised as outcomes of SM interventions. Conclusion The process of SM shaped the perspectives of patients and their caregivers on SM interventions. Their perspectives were influenced by the perceived benefit of the intervention, the sense of community with peers, the intervention's usability, and the level of individualised care. Our findings can inform the selection of patient-important outcomes, decision-making processes, including the formulation of recommendations, and the design and implementation of SM interventions.
Filiaciones:
Quispe, END:
Iberoamer Cochrane Ctr IbCC St Pau Biomed Res Ins, C St Antoni Maria Claret 167,Pabellon 18,Planta 0, Barcelona 08025, Spain
Garcia, LM:
Iberoamer Cochrane Ctr IbCC St Pau Biomed Res Ins, C St Antoni Maria Claret 167,Pabellon 18,Planta 0, Barcelona 08025, Spain
CIBER Epidemiol & Salud Publ CIBERESP, Madrid, Spain
Villagran, CO:
Avedis Donabedian Res Inst FAD, Barcelona, Spain
Red Invest Serv Salud Enfermedades Cron REDISSEC, Madrid, Spain
Univ Autonoma Barcelona, Barcelona, Spain
Heijmans, M:
Netherlands Inst Hlth Serv Res NIVEL, Utrecht, Netherlands
Sunol, R:
Avedis Donabedian Res Inst FAD, Barcelona, Spain
Red Invest Serv Salud Enfermedades Cron REDISSEC, Madrid, Spain
Univ Autonoma Barcelona, Barcelona, Spain
Fraile-Navarro, D:
Macquarie Univ, Australian Inst Hlth Innovat, Sydney, NSW, Australia
Madrid Primary Hlth Care Serv, Madrid, Spain
Perez-Bracchiglione, J:
Univ Valparaiso, Interdisciplinary Ctr Hlth Studies CIESAL, Valparaiso, Chile
Ninov, L:
European Patients Forum, Brussels, Belgium
Salas-Gama, K:
Inst Recerca Vall Hebron Hosp, Hlth Serv Res Grp, Barcelona, Spain
Vall Hebron Univ Hosp, Barcelona, Spain
Garcia, AV:
Univ UTE, Ctr Invest Salud Publ & Epidemiol Clin CISPEC, Quito, Ecuador
Univ UTE, Ctr Asociado Cochrane Ecuador, Quito, Ecuador
Alonso-Coello, P:
Iberoamer Cochrane Ctr IbCC St Pau Biomed Res Ins, C St Antoni Maria Claret 167,Pabellon 18,Planta 0, Barcelona 08025, Spain
CIBER Epidemiol & Salud Publ CIBERESP, Madrid, Spain
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