Colorectal cancer guidelines seldom include the patient perspective
Por:
Selva, A, Sanabria, AJ, de Guzman, EN, Ballesteros, M, Selva, C, Valli, C, Zhang, Y, Yepes-Nunez, JJ, Sola, I, Schunemann, H, Alonso-Coello, P
Publicada:
1 dic 2019
Resumen:
Objectives: This study aimed to describe how colorectal practice guidelines (PGs) incorporate the patient perspective.
Study Design and Setting: We searched in the Guidelines International Network library, MEDLINE, National Guideline Clearing-house, NHS Evidence database, and TRIP database. Two authors independently selected the PGs. We considered recommendations rated or worded as weak or conditional or suggesting multiple options, as potentially preference sensitive. Two authors independently evaluated if, in potentially sensitive recommendations, the patient perspective was incorporated.
Results: We included 28 PGs that contained 588 recommendations, being 256 potentially preference sensitive. Ten PGs (36%) included patients in the development process, and 12 (43%) provided information about patients' perspectives. Nine PGs (32%) included recommendations in which the patient perspective was explicitly considered, and 13 (46.4%) that recommended a discussion with the patient. From a total of 588 recommendations, 9.7% (25/256) of potentially preference-sensitive recommendations considered the patient perspective. The inclusion of patients in the development process was associated with a more frequent incorporation of the patient perspective in potentially preference sensitive recommendations (70% vs. 0%; P < 0.001).
Conclusions: Guideline users should be aware that the incorporation of the patient perspective in colorectal cancer PGs is suboptimal. Guideline developers should make efforts to incorporate the patient perspective, especially in preference-sensitive recommendations. (C) 2019 Elsevier Inc. All rights reserved.
Filiaciones:
Selva, A:
Corp Sanitaria Parc Tauli, Dept Clin Epidemiol & Canc Screening, Parc Tauli 1, Sabadell 08208, Spain
Biomed Res Inst St Pau IIB St Pau, Iberoamer Cochrane Ctr, St Antoni Maria Claret 167,Pavello 18,Planta 0, Barcelona 08025, Spain
Res Network Hlth Serv Chron Dis REDISSEC, Barcelona, Spain
Sanabria, AJ:
Biomed Res Inst St Pau IIB St Pau, Iberoamer Cochrane Ctr, St Antoni Maria Claret 167,Pavello 18,Planta 0, Barcelona 08025, Spain
de Guzman, EN:
Biomed Res Inst St Pau IIB St Pau, Iberoamer Cochrane Ctr, St Antoni Maria Claret 167,Pavello 18,Planta 0, Barcelona 08025, Spain
Ballesteros, M:
Biomed Res Inst St Pau IIB St Pau, Iberoamer Cochrane Ctr, St Antoni Maria Claret 167,Pavello 18,Planta 0, Barcelona 08025, Spain
Selva, C:
Open Univ Catalonia UOC, Dept Psychol & Educ Sci, Rambla del Poblenou 156, Barcelona 08018, Spain
Valli, C:
Biomed Res Inst St Pau IIB St Pau, Iberoamer Cochrane Ctr, St Antoni Maria Claret 167,Pavello 18,Planta 0, Barcelona 08025, Spain
Zhang, Y:
McMaster Univ, Dept Hlth Res Methods Evidence & Impact, Hlth Sci Ctr, Room 2C16,1280 Main St West, Hamilton, ON L8S 4K1, Canada
Yepes-Nunez, JJ:
McMaster Univ, Dept Hlth Res Methods Evidence & Impact, Hlth Sci Ctr, Room 2C16,1280 Main St West, Hamilton, ON L8S 4K1, Canada
Univ los Andes, Fac Med, Bogota, Colombia
Sola, I:
Biomed Res Inst St Pau IIB St Pau, Iberoamer Cochrane Ctr, St Antoni Maria Claret 167,Pavello 18,Planta 0, Barcelona 08025, Spain
CIBERESP, CIBER Epidemiol & Salud Publ, Barcelona, Spain
Schunemann, H:
McMaster Univ, Dept Hlth Res Methods Evidence & Impact, Hlth Sci Ctr, Room 2C16,1280 Main St West, Hamilton, ON L8S 4K1, Canada
Alonso-Coello, P:
Biomed Res Inst St Pau IIB St Pau, Iberoamer Cochrane Ctr, St Antoni Maria Claret 167,Pavello 18,Planta 0, Barcelona 08025, Spain
McMaster Univ, Dept Hlth Res Methods Evidence & Impact, Hlth Sci Ctr, Room 2C16,1280 Main St West, Hamilton, ON L8S 4K1, Canada
CIBERESP, CIBER Epidemiol & Salud Publ, Barcelona, Spain
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