Discrepancies in assessing intellectual disability levels in adults with Down syndrome: Implications for dementia diagnosis


Por: Soriano, LD, Sandkühler, K, Videla, L, Benejam, B, Carmona-Iragui, M, Wlasich, E, Kustermann, J, Barroeta, I, Vaqué-Alcázar, L, Rodríguez-Baz, I, Bejanin, A, Fernández, S, Arranz, J, Arriola-Infante, JE, Maure-Blesa, L, Juan, AS, Nübling, G, Wagemann, O, Stockbauer, A, Hassenstab, J, Levin, J, Fortea, J

Publicada: 1 jun 2025
Resumen:
INTRODUCTIONCut-offs derived from baseline cognitive assessments, stratified by intellectual disability (ID) level, have been proposed to diagnose symptomatic Alzheimer's disease (AD) in Down syndrome (DS). However, discrepancies in ID classification risk misclassification when applying cut-offs across sites. METHODSThis dual-center cohort study included 673 adults with mild to moderate ID at different AD stages. We assessed ID classification discrepancies across sites and the impact on Cambridge Cognitive Examination for Older Adults with Down's Syndrome (CAMCOG-DS) cut-offs for AD dementia diagnosis derived from receiver operating characteristic analysis. RESULTSInter-rater agreement for ID level classification was 95% within sites but 60% between sites. While CAMCOG-DS score distributions in the whole cohort were similar across sites, ID classification discrepancies caused higher cut-offs in Barcelona for mild and moderate ID compared to Munich. Applying site-specific cut-offs to another cohort reduced sensitivity and specificity. DISCUSSIONStandardizing ID classification is critical for generalizable cut-offs to accurately diagnose AD dementia based on neuropsychological assessments in DS.

Filiaciones:
Soriano, LD:
 Hosp Santa Creu i St Pau, Biomed Res Inst St Pau, Dept Neurol, St Pau Memory Unit, C St Quinti 77-79,Pavil 18,2nd Floor,Off 42, Barcelona 08041, Spain

 Ctr Biomed Invest Network Neurodegenerat Dis CIBER, Madrid, Spain

Sandkühler, K:
 Ludwig Maximilians Univ LMU Munich, Univ Hosp, Dept Neurol, Munich, Germany

Videla, L:
 Hosp Santa Creu i St Pau, Biomed Res Inst St Pau, Dept Neurol, St Pau Memory Unit, C St Quinti 77-79,Pavil 18,2nd Floor,Off 42, Barcelona 08041, Spain

 Ctr Biomed Invest Network Neurodegenerat Dis CIBER, Madrid, Spain

 Barcelona Med Ctr, Fundacio Catalana Sindrome Down, Barcelona, Spain

Benejam, B:
 Hosp Santa Creu i St Pau, Biomed Res Inst St Pau, Dept Neurol, St Pau Memory Unit, C St Quinti 77-79,Pavil 18,2nd Floor,Off 42, Barcelona 08041, Spain

 Ctr Biomed Invest Network Neurodegenerat Dis CIBER, Madrid, Spain

 Barcelona Med Ctr, Fundacio Catalana Sindrome Down, Barcelona, Spain

Carmona-Iragui, M:
 Hosp Santa Creu i St Pau, Biomed Res Inst St Pau, Dept Neurol, St Pau Memory Unit, C St Quinti 77-79,Pavil 18,2nd Floor,Off 42, Barcelona 08041, Spain

 Ctr Biomed Invest Network Neurodegenerat Dis CIBER, Madrid, Spain

 Barcelona Med Ctr, Fundacio Catalana Sindrome Down, Barcelona, Spain

Wlasich, E:
 Ludwig Maximilians Univ LMU Munich, Univ Hosp, Dept Neurol, Munich, Germany

Kustermann, J:
 Ludwig Maximilians Univ LMU Munich, Univ Hosp, Dept Neurol, Munich, Germany

Barroeta, I:
 Hosp Santa Creu i St Pau, Biomed Res Inst St Pau, Dept Neurol, St Pau Memory Unit, C St Quinti 77-79,Pavil 18,2nd Floor,Off 42, Barcelona 08041, Spain

 Ctr Biomed Invest Network Neurodegenerat Dis CIBER, Madrid, Spain

Vaqué-Alcázar, L:
 Hosp Santa Creu i St Pau, Biomed Res Inst St Pau, Dept Neurol, St Pau Memory Unit, C St Quinti 77-79,Pavil 18,2nd Floor,Off 42, Barcelona 08041, Spain

 Univ Barcelona, Inst Neurosci, Fac Med & Hlth Sci, Dept Med, Barcelona, Spain

 Inst Invest Biomed August Pi I Sunyer IDIBAPS, Barcelona, Spain

Rodríguez-Baz, I:
 Hosp Santa Creu i St Pau, Biomed Res Inst St Pau, Dept Neurol, St Pau Memory Unit, C St Quinti 77-79,Pavil 18,2nd Floor,Off 42, Barcelona 08041, Spain

 Ctr Biomed Invest Network Neurodegenerat Dis CIBER, Madrid, Spain

Bejanin, A:
 Hosp Santa Creu i St Pau, Biomed Res Inst St Pau, Dept Neurol, St Pau Memory Unit, C St Quinti 77-79,Pavil 18,2nd Floor,Off 42, Barcelona 08041, Spain

 Ctr Biomed Invest Network Neurodegenerat Dis CIBER, Madrid, Spain

Fernández, S:
 Barcelona Med Ctr, Fundacio Catalana Sindrome Down, Barcelona, Spain

Arranz, J:
 Hosp Santa Creu i St Pau, Biomed Res Inst St Pau, Dept Neurol, St Pau Memory Unit, C St Quinti 77-79,Pavil 18,2nd Floor,Off 42, Barcelona 08041, Spain

 Ctr Biomed Invest Network Neurodegenerat Dis CIBER, Madrid, Spain

Arriola-Infante, JE:
 Hosp Santa Creu i St Pau, Biomed Res Inst St Pau, Dept Neurol, St Pau Memory Unit, C St Quinti 77-79,Pavil 18,2nd Floor,Off 42, Barcelona 08041, Spain

 Ctr Biomed Invest Network Neurodegenerat Dis CIBER, Madrid, Spain

Maure-Blesa, L:
 Hosp Santa Creu i St Pau, Biomed Res Inst St Pau, Dept Neurol, St Pau Memory Unit, C St Quinti 77-79,Pavil 18,2nd Floor,Off 42, Barcelona 08041, Spain

 Ctr Biomed Invest Network Neurodegenerat Dis CIBER, Madrid, Spain

Juan, AS:
 Hosp Santa Creu i St Pau, Biomed Res Inst St Pau, Dept Neurol, St Pau Memory Unit, C St Quinti 77-79,Pavil 18,2nd Floor,Off 42, Barcelona 08041, Spain

Nübling, G:
 Ludwig Maximilians Univ LMU Munich, Univ Hosp, Dept Neurol, Munich, Germany

 German Ctr Neurodegenerat Dis DZNE, Munich, Germany

Wagemann, O:
 Ludwig Maximilians Univ LMU Munich, Univ Hosp, Dept Neurol, Munich, Germany

 German Ctr Neurodegenerat Dis DZNE, Munich, Germany

Stockbauer, A:
 Ludwig Maximilians Univ LMU Munich, Univ Hosp, Dept Neurol, Munich, Germany

 German Ctr Neurodegenerat Dis DZNE, Munich, Germany

Hassenstab, J:
 Washington Univ, Dept Neurol, St Louis, MO USA

 Washington Univ, Dept Psychol & Brain Sci, St Louis, MO USA

Levin, J:
 Ludwig Maximilians Univ LMU Munich, Univ Hosp, Dept Neurol, Munich, Germany

 Washington Univ, Dept Neurol, St Louis, MO USA

 Washington Univ, Dept Psychol & Brain Sci, St Louis, MO USA

 Munich Cluster Syst Neurol SyNergy, Munich, Germany

Fortea, J:
 Hosp Santa Creu i St Pau, Biomed Res Inst St Pau, Dept Neurol, St Pau Memory Unit, C St Quinti 77-79,Pavil 18,2nd Floor,Off 42, Barcelona 08041, Spain

 Ludwig Maximilians Univ LMU Munich, Univ Hosp, Dept Neurol, Munich, Germany

 Barcelona Med Ctr, Fundacio Catalana Sindrome Down, Barcelona, Spain
ISSN: 15525260





ALZHEIMERS & DEMENTIA
Editorial
WILEY, 111 RIVER ST, HOBOKEN 07030-5774, NJ USA, Estados Unidos America
Tipo de documento: Article
Volumen: 21 Número: 6
Páginas:
WOS Id: 001519388900017
ID de PubMed: 40528393
imagen Green Submitted, hybrid

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