Patient experience, satisfaction and shared decision-making in colorectal cancer screening: protocol of the mixed-methods study CyDESA
Por:
Selva, A, Lopez, P, Puig, T, Macia, F, Selva, C, Alvarez-Perez, Y, Terraza, R, Buron, A, Machlab, ST, Pericay, C, Sola, I, Tora, N, Rodriguez, V, Barrufet, C, Aymar, A, Bare, M
Publicada:
1 may 2022
Resumen:
Introduction Colorectal cancer (CRC) screening programmes can reduce incidence and mortality from this condition if adherence to them is high. As patient experience and satisfaction are key factors in determining adherence to screening programmes, they need to be measured. Furthermore, to promote highly patient-centred healthcare, the perception of patients regarding shared decision-making during CRC screening needs to be known. This study aims to assess the experience, satisfaction and participation in decision-making of participants in a CRC screening programme and of patients diagnosed with CRC through this programme in relation to the diagnostic and therapeutic processes of cancer.
Methods and analysis The CyDESA study is a mixed-methods study with a four phase sequential design. In phase 1, we will conduct a systematic review of patient-reported experience measures (PREMs) for patient experience or satisfaction with CRC screening. In case no located PREM can be applied, in phase 2, we will develop a new PREM. We will use the Delphi methodology to reach consensus among experts and patients and will conduct a pilot test of the developed PREM. Phase 3 is a multicentric cross-sectional study based on self-reported questionnaires that will be conducted at three Spanish hospitals (n=843). The objective is to find out about the experience, satisfaction and participation in decision-making of participants in the CRC screening programme who have had a positive screening test result according to their final screening diagnosis: false positives, colorectal polyps or CRC. Phase 4 is a qualitative phenomenological study based on individual interviews. It will explore the experiences of participants in the CRC screening programme and of those diagnosed with CRC.
Ethics and dissemination Ethics approval by the Ethics Committees of Corporacio Sanitaria Parc Tauli, Hospital de Sant Pau and Parc de Salut Mar. Findings will be published in peer-reviewed journals and presented at conferences.
Filiaciones:
Selva, A:
Consorci Corp Sanitaria Parc Tauli, Clin Epidemiol & Canc Screening, Sabadell, Catalunya, Spain
Autonomous Univ Barcelona, Dept Paediat Obstet Gynaecol & Prevent Med, Barcelona, Catalunya, Spain
Lopez, P:
Consorci Corp Sanitaria Parc Tauli, Clin Epidemiol & Canc Screening, Sabadell, Catalunya, Spain
Puig, T:
Autonomous Univ Barcelona, Dept Paediat Obstet Gynaecol & Prevent Med, Barcelona, Catalunya, Spain
Inst Invest Biomed St Pau IIB St Pau, Clin Epidemiol & Healthcare Serv, Barcelona, Catalunya, Spain
Macia, F:
Hosp Mar Inst Med Res, Epidemiol & Evaluat Dept, Barcelona, Catalunya, Spain
REDISSEC, Hlth Serv Res Chron Patients Network, Madrid, Spain
Selva, C:
UOC, Psychol & Educ Sci Studies, Barcelona, Catalunya, Spain
Alvarez-Perez, Y:
Fdn Canaria Inst Invest Sanitaria Canarias FIISC, Serv Evaluac Serv Canario Salud, Santa Cruz De Tenerife, Santa Cruz De T, Spain
Terraza, R:
Dept Salut, Barcelona, Catalunya, Spain
Buron, A:
Hosp Mar Inst Med Res, Epidemiol & Evaluat Dept, Barcelona, Catalunya, Spain
REDISSEC, Hlth Serv Res Chron Patients Network, Madrid, Spain
Machlab, ST:
Consorci Corp Sanitaria Parc Tauli, Gastroenterol Dept, Sabadell, Catalunya, Spain
Pericay, C:
Consorci Corp Sanitaria Parc Tauli, Dept Med Oncol, Sabadell, Catalunya, Spain
Sola, I:
Inst Invest Biomed St Pau IIB St Pau, Clin Epidemiol & Healthcare Serv, Barcelona, Catalunya, Spain
CIBER, CIBERESP, Madrid, Comunidad De Ma, Spain
Tora, N:
Althaia Fdn Manresa, Canc Screening Programs, Manresa, Catalunya, Spain
Rodriguez, V:
Pompeu Fabra Univ, Sch Hlth Sci, TecnoCampus Super, Mataro, Catalunya, Spain
Barrufet, C:
Hosp Mar Inst Med Res, Epidemiol & Evaluat Dept, Barcelona, Catalunya, Spain
Aymar, A:
Inst Invest Biomed St Pau IIB St Pau, Clin Epidemiol & Healthcare Serv, Barcelona, Catalunya, Spain
Bare, M:
Consorcio Corp Sanitaria Parc Tauli, Epidemiol & Canc Screening, Sabadell, Spain
gold, Green Published
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