Incorporating patients' views in guideline development: a systematic review of guidance documents
Por:
Selva A., Sanabria A.J., Pequeño S., Zhang Y., Solà I., Pardo-Hernandez H., Selva C., Schünemann H., Alonso-Coello P.
Publicada:
1 ene 2017
Resumen:
Objectives To assess how guidance documents for developing clinical guidelines (CGs) address the incorporation of patients' views in CGs. Study Design and Setting Systematic review to identify the methodology provided in guidance documents for incorporating (1) patients or representatives and (2) patients' views in the CG development process. The search was performed in 2017 in five databases. Two authors selected the studies, and data extraction was double-checked. Results We included guidance documents from 56 institutions. Of those, 40 (71.4%) recommended the inclusion of patients or their representatives, mainly for developing recommendations (14/40, 35.0%); reviewing the final version (13/40, 32.5%); formulating clinical questions (13/40, 32.5%); defining the scope and objectives (10/40, 25.0%); and dissemination and implementation (10/40, 25.0%). Concrete methods on how to incorporate patients were provided by 47.5% (19/40) of institutions. Forty (71.4%) institutions provided additional strategies to incorporate patients' views. The majority (30/40, 75.0%) suggested sources for obtaining these views (consultation with patients [24/40, 60.0%], using panels' judgment [10/40, 25.0%], conducting de novo research [10/40, 25.0%], or a systematic review [9/40, 22.5%]). Conclusion Although most institutions suggest incorporating patients and their views when developing CGs, little detail is provided on how to do this. Institutions should provide more guidance as this could have a positive impact in guideline applicability. © 2017 Elsevier Inc.
Filiaciones:
Selva A.:
Clinical Epidemiology and Cancer Screening Department, Corporació Sanitària Parc Taulí, Parc del Taulí 1, Sabadell, 08208, Spain
Iberoamerican Cochrane Centre, Biomedical Research Institute Sant Pau (IIB Sant Pau), Barcelona, Spain
Research Network on Health Services in Chronic Diseases (REDISSEC), Spain
Sanabria A.J.:
Iberoamerican Cochrane Centre, Biomedical Research Institute Sant Pau (IIB Sant Pau), Barcelona, Spain
Pequeño S.:
Iberoamerican Cochrane Centre, Biomedical Research Institute Sant Pau (IIB Sant Pau), Barcelona, Spain
Zhang Y.:
Department of Clinical Epidemiology & Biostatistics, McMaster University, Hamilton, Ontario, Canada
Solà I.:
Iberoamerican Cochrane Centre, Biomedical Research Institute Sant Pau (IIB Sant Pau), Barcelona, Spain
CIBER Epidemiología y Salud Pública, (CIBERESP), Spain
Pardo-Hernandez H.:
Iberoamerican Cochrane Centre, Biomedical Research Institute Sant Pau (IIB Sant Pau), Barcelona, Spain
CIBER Epidemiología y Salud Pública, (CIBERESP), Spain
Selva C.:
PETRO Research Group, Spain
Department of Social Psychology, Autonomous University of Barcelona, Barcelona, Spain
Schünemann H.:
Department of Clinical Epidemiology & Biostatistics, McMaster University, Hamilton, Ontario, Canada
Alonso-Coello P.:
Iberoamerican Cochrane Centre, Biomedical Research Institute Sant Pau (IIB Sant Pau), Barcelona, Spain
Department of Clinical Epidemiology & Biostatistics, McMaster University, Hamilton, Ontario, Canada
CIBER Epidemiología y Salud Pública, (CIBERESP), Spain
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